These changes are tragic, and sad for the Down syndrome community - the one I am part of.
Many adults will lose their way of travelling to work, their ability to get to activities. It is disempowering for all. This hits the most vulnerable members of our community yet again, in the hardest way. We already have to fight so hard to get this allocation of IF funds, and go through many hoops to justify why it is needed. And now its use is restricted in use, which entirely contravenes the purpose for which it was required. This sudden announcement is grossly unfair. People's lives have changed immediately.
We are in the very early stages of being on the path to an ASD diagnosis. I'm sad to realise that the help won't be there or will be very limited. This is an extremely lonely road as it is without the lifelines being pulled away. We are a small family - there are very little in the way if people that are willing to assist us with the complex needs of our child. I'm scared for the future of my child, our family - not to mention an entire diverse community in our country that are going to suffer so harshly under these sudden changes.
This is funding cuts by stealth and is absolutely disgusting. It will badly affect us as a family as we care for our child who has a genetic syndrome. This will curtail his ability to enjoy the activities he is passionate about and that provide him with a chance to boost his self esteem and confidence. The changes will have a more devastating impact on other families with whanau members who have more severe disabilities. I really feel for them and worry that there will be broken families and carers and it could bring devastating consequences.
These changes are tragic, and sad for the Down syndrome community - the one I am part of.
Many adults will lose their way of travelling to work, their ability to get to activities. It is disempowering for all. This hits the most vulnerable members of our community yet again, in the hardest way. We already have to fight so hard to get this allocation of IF funds, and go through many hoops to justify why it is needed. And now its use is restricted in use, which entirely contravenes the purpose for which it was required. This sudden announcement is grossly unfair. People's lives have changed immediately.
We are in the very early stages of being on the path to an ASD diagnosis. I'm sad to realise that the help won't be there or will be very limited. This is an extremely lonely road as it is without the lifelines being pulled away. We are a small family - there are very little in the way if people that are willing to assist us with the complex needs of our child. I'm scared for the future of my child, our family - not to mention an entire diverse community in our country that are going to suffer so harshly under these sudden changes.
This is funding cuts by stealth and is absolutely disgusting. It will badly affect us as a family as we care for our child who has a genetic syndrome. This will curtail his ability to enjoy the activities he is passionate about and that provide him with a chance to boost his self esteem and confidence. The changes will have a more devastating impact on other families with whanau members who have more severe disabilities. I really feel for them and worry that there will be broken families and carers and it could bring devastating consequences.